5-24-14

9:30am

I have not been feeling well with 

all over throbbing, stomach pains, tiredness

and more than usual bathroom trips.

I keep chugging along with half a smile but I make sure

my family (in my house) knows that I haven't

been feeling well and to know what 

to expect from me when doing things.

I started taking my medicine and ibuprofen

for pain.  I haven't really taken my medicine in

almost 6 months but have been for the last week.  

First of all I didn't see where it

was doing me any good when I still landed

in the hospital twice.  Then when I needed a refill

from my GI's office they took their sweet ole time

of a month to get me my medicine.

So I went without.  Plus it's just too darn

expensive while I'm still trying to pay off dr. bills

from my hospital stays and GI doctor.

10:30am

Hubby's wants to go to the race track today.

It has been up in the air as to where we are going.

It started out as National Trail Raceway,

then to Columbus Motor Speedway

and now I think we're going to Pacemakers

in Mount Vernon.

Make up my mind already!

7:30pm

Too pooped to pop.

Anytime we spend the day at the drag strip

I get so tired and wore out by the time

we make it back home.

I'm ready to head to bed at only 7:30pm!

Once at the track we parked by the strip

to watch the cars.  A little while went by

then the stomach pains came once again

and I needed a port-a-potty close by

so we had to move the truck closer to the potty.

It was a good thing because I had to go four

times while there and once upon returning home.

When the stomach pains come it will stop

you in your tracks and will make

you do a lamaze type breathing technique!

10:15pm

I was thinking that maybe the stomach pain

was being caused by sudden movements

like going from a sitting to standing position.

I was wrong.  Was totally asleep

with very little movement til now when I was

rudely awoken with stabbing stomach pains

that had me jumping out of bed and running for the bathroom.

Usually the pains are followed by having to go potty

most of the time.  But there have been a few times

it didn't do that.

I was very thirsty also but that could of been because

of possibly sleeping with my mouth open.

And...There's another bathroom trip not even

5 minutes later.  

I know I should be writing about other things

but I have to take notes about the way I'm feeling

that way if I go to the doctors or hospital I 

have reference as to what happened and when.

Hubby thinks I should call my GI and make an

appointment.  I just laughed and laughed.

When I was in the hospital and getting ready

for discharge my GI doctor says to make

a follow up appointment with his office

in two weeks to see how I was doing.

No explanation in the world could have gotten

me into that office in two weeks time.

The next available time slot was a month

and that was with a nurse practitioner and not

even my doctor!  I also requested to be squeezed

in if there was a cancellation.  No such luck.

I really don't have the money to go to the ER.

Hell I'm still trying to pay off doctor's and the

hospital from last October and December and 

that's after getting financial help through the hospital.

I worry about getting C Diff again.

The say if you have Crohn's and get it once

then the risks are high of getting it again.

The hospital told me that if I returned back to 

them in the next year I would also be

put into isolation that I could infect other patients

there even a year later!  

C Diff is to be taken seriously as it could cause

very severe complications and even death

if not treated.

Of course tomorrow the GI office isn't open

and I'm sure they are not open Monday due to the

holiday.  If I could get into their office I know

they could put me on Prednisone and Flagyl.

I can't do the Cipro.  I found out the hard way

twice that I am allergic to both the pill and

IV form.  Don't want to go that route again!

GI doctor's appointment he put me on Cipro pill.

I kept taking it and noticed severe stomach pains

on top of the stomach pains I already had.

He took me off it.  I go into the hospital

and told them I had a bad reaction to the pill

so they decide maybe it would be different

if they tried the liquid IV form of it.

Oh hell no!.  As soon as they started pushing

that needle into the IV tube it felt as though

my whole arm was set on fire.

I'm begging and pleading with them to stop.

It hurt so bad I was crying.  They

finally did and tagged my wrist saying

I was allergic to it.  They should of listened

to me when I told them the pill form didn't work for me.